Two days before Christmas, I have a Dr appt. He will not be seeing me because I do not feel like sitting in a crowded waiting room. Every time I go to see him I have an attitude and my blood pressure is up because of the waiting. I just don't feel like it and as a lupus patient I can say that. 

I have my pernil marinating in the fridge and my stuffing is done, since I am not goin  to the Dr my dinner will be done the day before and if I feel like going out for a little while I can or I can just stay home on Christmas and relax. I have to see how I'm going to feel about that.

I don't really expect any gifts at all, Christmas is basically for the children. It would be nice tho. I don't know why but it seems as if the spirit of the holiday has left me. I don't know if it's because so many ppl have died and gone on or because I'm just not in the mood. I smile and enjoy the ppl around me but they really don't know how I feel. Instead of doing what I always do maybe I will spend this Christmas with people I can trust  Me Myself and I.

I'm going to do my Mac and cheese tonight because my pernil will have  to cook for almost 6 hours tomorrow.

For all those who read my blog, happy holidays to you and your family and many blessings for a wonderful new year!!

Vacation, shopping and so much more

There has been so much going on! I left for Georgia on 11/22/2013. My nephew and brother in law met me at the station in Atlanta. We left there and headed to Aragon Georgia, my sister lives in the country. I love it there because it is so peaceful. The train ride was 17 hours and 55 minutes so you might as well say 18 hours. I was really tired. We went to choir rehearsal, go back for dinner, I ate and passed out, they said I was snoring lol. The next day the train from Atlanta to New York derailed. No one was hurt but people were shook up understandably.

On the 25th I walked into sally's beauty supply to shop for the first time. I picked up a few items and got my sally's card, you would have thought it was a credit card lol I contained my happiness until I got back in the van. I was already on the sally's site so all I had to do was enter the information on the card into my acct and when I did they told me the card was expired so of course I sent an email to sally's so they could straighten it out. I don't understand how it could be expired and I used it twice, the sticker clearly states that I have to renew the card in Nov 2014. So glad I keep my receipts of everything I buy!!

My sister Lynda picked me up and we shopped in Ross, Dollar Tree, Dollar General, Michael's and of course Sally's again. Then we went out to eat. She treated me to Captain D' s. We talked, laughed and had a wonderful day.

The family reunion was great, it was so nice breaking bread with everyone and knowing that everyone there was my family, there was so many of us and my grandma was there as well. I was elated. I didn't pig out as planned but just had a little tbsp of what I loved best. 

It was wonderful seeing faces that I haven't seen in over 30 years.

My sister Betty was off this Friday due to the holiday so we did some more shopping at the stores I mentioned before, she also treated me to a restaurant called The Shrimp Boat and their butterfly shrimp was great!

The time to leave came too quick but my nephew Geno made sure we hung out and had fun before I boarded the train. We had a nephew auntie date. We went to see best man holiday and we laughed and I cried a little bit lol. We left there and went to Chili's where I had a blackberry patron margarita and Spicey shrimp tacos that came with seasoned rice and black beans. I was in heaven!. We proceeded to my nephews house where him and his wife live and they gave me a beautiful shawl as a gift. I'm in love with it and can't wait to wear it.

We chilled out for a little while and then he drove me to the station, by this time those drunken blackberries had kicked in lol.

The train pulled in and he helped me with my luggage onto the train, gave me a hug and a kiss and told me he would see me next time. The train ride was long and I had a nice lady sitting next to me, we got along just fine. That next morning I found out about the derailment on the metro north train and some of my family called me because they thought I was on that train and I explained to then that I wasn't I was on Amtrak. 

My train pulled in on time on Sunday but on Monday I had to hit the ground running because I had a Dr appt. We talked about hip replacement surgery and I saw the xrays of the damage. From what he tells me it will only get worse but I don't think I need to do surgery right now, so he wants me to lose about 15 pounds then we can revisit the surgery thing. I already know that at some point I am going to have to do this, I just don't want to do it right now.

Since I did alot of nail related shopping I am going to put up another youtube video of the things I purchased. My nails aren't looking too cute right now so I am going to do them first, then do the video lol.

I know this was a long post but I had so much fun in Atlanta that I had to write about it. My family would love to have me down there but I have to really think on that on, I am getting ready to turn 50 and I still have a few things to do yet.

~peace~

A different outlook.....

I haven't been here in awhile due to Dr appointments, being sick and just life in general. For the last couple a week's I have been getting a push in life, I guess you could say it's from the universe. My bestie and I were hanging out and decided that the following weekend we would go to the shadow nightclub. She wanted me to do her nails and I told her that I haven't done any acrylics yet but if she got her fill in I would do her design. She loved her nails, the accent design was a hit. We went out to the shadow had a wonderful time and just this past Saturday she hit me up for an appointment to redo her design. She was so pleased that she gave me a $25.00 Amazon gift card. I redid her design and I'm quite sure she will be back for another one because she loved this one too!!!. 

I used the gift card to buy myself a nail drill for acrylics and gel nails. If it wasn't for the nail tech I had refusing to do a certain design I wanted I wouldn't have turned to YouTube. Once I did get there (youtube) and typed in "acrylic nails" I saw so many videos with so many ladies doing their own nails at home I felt stupid for going to the salon all this time.

I wanted to do my own nails to save money for myself, I never thought I would be doing anyone else's nails. I did tell her that I wanted to do acrylics on myself first before anyone else and when I got the science down then I would do hers. I have to shout out all the ladies I am subbed to on YouTube....especially vianneylu1 she makes it look effortless and I know no one is perfect, watching her and all you ladies gave me the confidence I needed to give this a try and I'm glad I did because now I'm being helped I guess by "the universe"

I also have something else going on I started using a Rainbow Loom with the bpa free rubber bands. I found them on YouTube as well and started doing designs just for fun (gotta mention vianneylu1 here as well because she was the first one I saw with the loom), I threw a few pics on my Facebook page and two people I know want me to make 2 apiece for them and they are willing to pay....now I'm starting to ask myself some serious questions, maybe going back to school to be an accountant isn't what I should be doing. Seems as though I am being "directed" onto a different path (that universe again lol).

I bought a kitchen aid stand mixer some time ago because I wanted to sell cookies, I became afraid that people would not buy them and that went off to the wayside for a minute however it's back now because I'm starting to look at this whole world through different eyes. I'm turning 50 next year and certain things are falling into place. I also found a school where I can go for nails and catering it's just I would have to go for each thing one at a time so I'm going for nails first then catering. I do believe it's time to break out the sugar cookie recipe and get to baking again...I can make friendship bracelets in between.

I'm going to do my best not to spread myself too thin at all but I'm so excited because my confidence level is on the upswing~life is groovey right now and when you live with lupus that's more than you could ever ask for.

~Fuji~

Been So Long....

I'm back after being gone for so long. So many things going on and so many Dr appointments to keep. Earlier this month I returned to my lupus Dr and he told me that all my levels were great, blood work all came back fine however they xrays showed that hip replacement surgery may be needed. The lupus Dr set me up for an appointment with the orthopedic clinic which is 12/2 however I decided that I needed to see my rheumatologist first and see how he feels about this. I went to see him and he is in agreement with the lupus Dr...the object is to keep me off the table i mean it's just too dangerous. I'm going to keep my appointment with the ortho clinic just to see what kind of people they are. When I say that I mean I need to find out if they have my best interest in mind or the money they can make. This will tell the story. I have 3 drs saying the same thing so I can wait to see how this plays out.

In the meantime I am counting down to thanksgiving and the time I get to spend with my family and the shopping I get to do. I'm looking forward to the feast at thanksgiving and being in Georgia with my family.

What is this mess with youtube and charging a fee if you have over 10,000 subscribers??? They are straight crazy I mean really??? Stop it, that is going to cause so much unnecessary bs that it makes no sense.

I'm getting ready to go back to school....I found a free nails class I can take and also a catering course that is free as well...tuition free that is, I know materials are going to cost and I'm ready because sitting in the house and not moving isn't going to get it for me so look out world, here I come lol.

I think I covered everything, I should be all caught up now lol. I see I have people reading my blog...Thank you!

~peace and blessings~

Just another day....

Hello Bloggers...

Just coming through with a discovery...I learned how to post a video to youtube from my Samsung galaxy tab 2 however now that I know how I'm nervous!!! I did a two part video already but it's old ...like last month...I know I know, I need to just throw it up there and see what happens. I went to Michaels today and picked up the Rainbow Loom, some xtra rubber bands, some embroidery floss and some links and bracelet closures. I have alot of crafts going on right now. I don't mind because I am learning something new. I'm going to try it out and then do a video later on, I want to make a bracelet first so I can show that off as well. Hopefully I won't be judged too harshly, the good thing about this is I can block ppl and delete their comments, not that I want to but some ppl can be so mean sometimes and with everything that I have going on I don't need the negativity. So let me rest for awhile and then I will start using the Rainbow Loom to make a bracelet. I will return with an update, until then....

~peace~

Me, Myself and Gizmo

Hello everyone, I'm back. The last time I was here I was seriously upset. I try not to let certain things or people get to me but when it's your best friend of all your life and your significant other that you have been with for 12 years getting on your last nerve by lying to you some things are just hard to forgive. My best friend told me that we were going to the movies lastnight, well she called and stated that the movie was sold out and that she would call me after she got off from work. I had no reason not to believe her so I remained dressed and even did my own nails. Time passed and I realized that she wasn't going to call me. So I sent her a nice little text and left it at that but of course since she has known me all my life she knows that I'm not messing with her for awhile. 

As for my significant other...she,(yes I said it) is a whole other story. Lying to me for no reason over something that didn't make any sense...not only did you lie to me, you expect to get away with it. Anyone who knows me, knows that you get away with nothing when you do me wrong. Trust? There is none when you lie, a relationship? It just dissolved when you lied. Trust and believe I am going to give her a few choice words and she can stay or bounce makes me no difference; I was born by myself and I'm going to die by myself.

While I am typing this I am in serious pain, the day hasn't even begun yet, it's just now noon and I have only been up for 3 hours. Tramadol will have to be taken along with the rest of my medication and I hate taking that, it knocks me out and when I wake up I don't know if it's the same day, the next day or yesterday lol. 

If I do have to have this surgery, this blog will be my outlet...lupus is a funny thing...ppl don't understand it so they run away or become misinformed. Support from friends and family members is hard to keep by your side. They have to be willing and dedicated to you, sometimes that is alot to ask if a human being. I have been on the other side as well and it is stressful.

I do believe I have rambled on enough, thank you for reading and you can leave a comment if you like,I know there are some others out there with lupus just like me.

~have a wonderful day~

P.S. I forgot to mention Gizmo my cat!! He is the only cat person I can rely on, he stays by my side when I'm not feeling well and seems to understand me very well. God created animals so wise. Gizmo saved my life once but I will blog about that another time.

~peace~

Lupus and Me....

This is my first blog on this site and for me it's going to be like a diary I guess. I am having a hard time wrapping my brain around what the Dr told me on Tuesday. It was bad enough that I had to wait 3 hours to see him but for him to tell me that the x-rays showed Aseptic Necrosis and refer me to the Orthopedic clinic and physical therapy is a whole new thing to me. Hip Replacement Surgery, me???? I'm too young for this bullshit!!! I'm only 49 and never thought I would have Lupus in the first place and have to see a specialist about a hip replacement in the second place.

 

This is the time that I miss my parents the most. Going under the knife for me isn't an easy thing. I had to call everyone on the "crew" list to let them know what is any to take place at the end of the year. I'm going on vacation first to celebrate my family reunion in Georgia. I am truly trying to get all my fun in before I make a decision. I'm hoping there is something else they can do besides surgery.

My platelets are up @ 149 white blood cells are up (last time they were low) so I had good labs on this visit, it just bugs me that he won't take me off the prednisone and that is what is causing all this trouble.

I will blog again in a few days or even tomorrow, sleepy now...

Goodnight blogspot <3